This report provides a summative evaluation of the impact and learning from a three- year Hospice UK transition programme that aimed to:
“improve the care and experiences of young adults with complex and life-limiting conditions, with a particular focus on improving the ‘transition’ process these young adults undergo when moving from children’s to adults’ palliative care services.”
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Being Curious and Confident - Hospice UK - 2023.pdf
Read the 'Being curious and confident' evaluation report.
Acknowledgments
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This report was researched and written by Susanna Shouls, MSc.
The literature was reviewed by Melanie Hodson.
The programme was led by a Hospice UK team comprising of Stuart Duncan, Anita Hayes, Angela Horsley, Carrie James and Catherine Longton. Becki Ward created the illustrations.
We would like to thank Hannah Hodgson and Tom Hardwick, Patient Advisory Consultants for their insights, steer and expertise. We would like to thank Lizzie Chambers, Together for Short Lives and the three ECHO hub teams: Keech Hospice Care, NHS Solent and the former Yorkshire and Humber Children’s Palliative Care Network for their commitment and work on the programme.
We would like to thank Tracy McTernaghan and Max Watson, Project ECHO™ team in Northern Ireland, for their guidance and work training and supporting the ECHO hubs.
This programme was made possible due to the generous support of the DD McPhail Charitable Settlement.
Published March 2023.
How to cite this document
Shouls S. Being curious and confident: learning from the Hospice UK transition programme for young people with life-limiting conditions: evaluation report. London: Hospice UK; 2023.
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Transition from children's services into adulthood
Find out what support young people need when they are transitioning from children's services into adulthood and how Hospice UK can help you provide the appropriate care.
