This "Listening differently to users: assessing the feasibility and value of real-time reporting of the experience of people receiving care in the last year of life" publication outlines the findings of a Real Time Reporting pilot project developed by the National End of life Care Programme, Marie Curie Cancer Care and Help the Hospices (now Hospice UK).
The aim of the project was to find more effective ways to collect, analyse and present data on the experience of people receiving care in their last year of life, as a basis for service improvement.
This Real Time Reporting pilot was carried out across a range of care services operating in Lincolnshire. It captured the views of patients considered to be in the last year of life as well as their family and carers. The pilot had two phases, run over 3 months and 4 months respectively between 2012–2013.
The project sought to encourage the collection of data from patients thought to be in the last year of their life, which could be examined at local, regional and/or national levels. It wanted to learn more about the experiences of people receiving end of life care and to explore whether similar strategies for collection, collation and dissemination could work in the variety of settings in which end of life care is offered.
Most importantly it wanted to consider how system-wide improvement of end of life care could be effected by high quality feedback of patient and carer experience.
The report makes recommendations for future actions, reflecting the findings of the pilot project.
