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An overview of the impact of grants awarded by St. James' Place Charitable Foundation to hospices in 2019, under the theme of 'Breathlessness and Lung Health'.

2019 - Breathlessness and Lung Health

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St. James’s Place Charitable Foundation has supported Hospice UK since 2002, by funding a grants programme for hospices. The overarching aim of these grants is to invest in emerging innovations in hospice care, which have the potential to transform how we support people at the end of life.

The grants programme focuses on a different area of care each year. In 2019, the theme was Breathlessness and Lung Health.

Each of the projects we funded were different, but we there are some common themes across the grant programme as a whole. In this report we will explore those themes to give an overview of the impact of the funding. We will also look at how the projects will be sustained and developed in the future, and how learning will be shared. 

How the grants were allocated

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A total of 41 applications were received from hospices across the UK. Collectively, the requests were worth more than £1.2m in terms of the total amount being requested. 

At a meeting of the Grants Committee, which included St. James’s Place Charitable Foundation staff and trustees, a total 19 grants were awarded amounting to a total of £482,821. A breakdown of hospices awarded a grant, whose applications demonstrated the greatest need and proposed the most appropriate plans to meet those needs, is given below.

St. James’ Place Charitable Foundation Grants 2019

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Organisation Location Project Title Amount Awarded
Dorothy House Hospice Bradford-on-Avon Palliative Progressive Lung Disease Clinic 29,257
Dove House Hospice Hull Sing to Breathe 17,513
Great Oaks, Dean Forest Hospice Coleford "Fatigue and Breathlessness Group" 7,787
Halton Haven Hospice Runcorn Extend and enhance our current breathlessness management Programme 28,500
Katharine House Hospice Banbury Breathe Easy: increasing patient and carer confidence in managing breathlessness 16,516
Kirkwood Hospice Huddersfield Breathe Better 19,000
Lindsey Lodge Hospice Scunthorpe B.E.E.P - The 'Breathe Easy Enablement Programme' for patients and their families 39,520
LOROS Leicester Help with Breathlessness at Home 14,000
Mary Stevens Hospice Stourbridge Fatigue, Anxiety and Breathlessness Groups 14,853
Nottinghamshire Hospice Nottingham Breathe Easy with Nottinghamshire Hospice 20,307
Rowcroft Hospice Torquay Development of a breathlessness, fatigue and anxiety self-management 4-week programme 21,795
Saint Michael's Hospice Harrogate Breathlessness Crisis Response Service 39,870
St Gemma's Hospice Leeds St Gemma’s Breathlessness Support Package 39,823
St Helena Hospice Colchester Improving outcomes for patients with respiratory disease 28,595
St John's Hospice Lancaster Managing Breathlessness in Prisons 9,773
St Oswald's Hospice Newcastle upon Tyne Equity of choice for patients with a need for Long Term Ventilation (LTV) 32,391
St Wilfrid's Hospice Chichester St Wilfrid's Hospice: Breathe Well Live Well 35,700
Strathcarron Hospice Denny, Scotland Living Well with an Advanced Lung Condition 36,797
The Rowans Hospice Waterlooville ‘A breath of fresh air’: transforming the management of breathlessness in Portsmouth and South East Hampshire 30,824
Grand Total - 19 projects     £482,821

Key themes

Sharing learning

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All the hospices are keen to share the learning from these projects, internally, locally and nationally. This might be through training, producing resources, speaking at conferences and learning events or publishing journal articles.

The project lead from St Oswald’s hospice has provided support and advice to other respiratory leads and sat as Secretary for the National Paediatric Long-term ventilation (LTV) Hospice Forum.

“By demonstrating that it is possible to care, well, for LTV patients in a Hospice setting, we hope that St Oswald’s and the other beneficiaries of this funding have encouraged other Hospices to revisit their policies and staff training in this area.”

- St Oswald’s hospice

Future development

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All of the hospices plan to build on the learning from the Breathlessness and Lung Health projects. Some have sought funding to continue the project, and others decided to extend it to a wider geographical area or improve existing hospice provision based on what worked well.

“The methods of development, format, and feedback systems used for this project are being used to develop further group support programmes for other areas of our care, and to support specific symptoms, and illnesses.”

- Mary Stevens hospice

“A business plan is currently being worked on to take to the executive team to create and staff a flexible multidisciplinary team that can move from GP surgery to GP surgery to deliver self-management programmes within our geographical area.”

- Kirkwood hospice